Towards better-informed consent: Research with livestock-keepers and informal traders in East Africa

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cg.authorship.typesCGIAR and advanced research instituteen_US
cg.contributor.affiliationInternational Livestock Research Instituteen_US
cg.contributor.affiliationUniversity of Miyazakien_US
cg.contributor.affiliationSwedish University of Agricultural Sciencesen_US
cg.contributor.crpAgriculture for Nutrition and Healthen_US
cg.coverage.countryKenyaen_US
cg.coverage.countryTanzaniaen_US
cg.coverage.iso3166-alpha2KEen_US
cg.coverage.iso3166-alpha2TZen_US
cg.coverage.regionAfricaen_US
cg.coverage.regionEastern Africaen_US
cg.creator.identifierJohanna Lindahl: 0000-0002-1175-0398en_US
cg.creator.identifierDelia Grace: 0000-0002-0195-9489en_US
cg.creator.identifierSilvia Alonso: 0000-0002-0565-536Xen_US
cg.howPublishedFormally Publisheden_US
cg.identifier.doihttps://doi.org/10.1016/j.prevetmed.2016.04.008en_US
cg.isijournalISI Journalen_US
cg.issn0167-5877en_US
cg.journalPreventive Veterinary Medicineen_US
cg.reviewStatusPeer Reviewen_US
cg.subject.ilriAGRI-HEALTHen_US
cg.subject.ilriCOMMUNICATIONSen_US
cg.subject.ilriLIVESTOCKen_US
cg.subject.ilriRESEARCHen_US
cg.volume128en_US
dc.contributor.authorCooper, Tarni L.en_US
dc.contributor.authorKirino, Y.en_US
dc.contributor.authorAlonso, Silviaen_US
dc.contributor.authorLindahl, Johanna F.en_US
dc.contributor.authorGrace, Deliaen_US
dc.date.accessioned2016-05-22T11:56:03Zen_US
dc.date.available2016-05-22T11:56:03Zen_US
dc.identifier.urihttps://hdl.handle.net/10568/73663en_US
dc.titleTowards better-informed consent: Research with livestock-keepers and informal traders in East Africaen_US
dcterms.abstractWith the rise of the One Health paradigm, ethicists have called for new research approaches, considering the interdependent relationships of humans, animals, and their environment. These relationships can be particularly complex within resource-poor, smallholder livestock systems, necessitating a rigorous informed-consent process. Little has been published on informed consent beyond human-subject research. This paper outlines two studies on informed consent, for research identifying diseases of animal and human importance, within smallholder livestock value chains.Firstly, a randomized independent-group study compared three communication tools (written, cartoons, and photographs) for informing 22 Tanzanian livestock-keepers before seeking their consent.A significant difference in comprehension and engagement in the informed-consent process was found between tools, and cartoons had the highest (i.e. best combined comprehension and engagement) scores.Most (21 out of 22) farmers answered half or more the questions correctly, but none were able to answer all questions. Comprehension testing allowed identification of common misunderstandings, such as immediate benefits the farmers would receive and the process to be used for relaying research results.Dialogue stimulated by cartoons and photographs allowed researchers to determine and respond to participants’ varied relationships with their livestock.The second study assessed preferred methods for indicating consent among informal-sector milk vendors in Nairobi, Kenya. Of consenting participants, 61% (140/230) indicated consent verbally, 39% (90/230)signed consent and none chose thumbprint. There was a significant enumerator-effect on both overall consent and the methods chosen.Several of these findings echo those published in human-medical research. Additionally, highlighted here is the importance of facilitating dialogue during the informed-consent process in One Health research, for a more nuanced understanding of relationships between humans, animals, and their environment. Also discussed is how a requirement to sign consent forms might limit consent among workers in informal markets, which are commonly studied in One Health research. We suggest expansion of these, and development of further, studies towards improving consent processes in One Health research.en_US
dcterms.accessRightsOpen Accessen_US
dcterms.audienceScientistsen_US
dcterms.bibliographicCitationCooper, T.L., Kirino, Y., Alonso, S., Lindahl, J. and Grace, D. 2016. Towards better-informed consent: Research with livestock-keepers and informal traders in East Africa. Preventive Veterinary Medicine 128: 135-141.en_US
dcterms.extentp. 135-141en_US
dcterms.issued2016-06en_US
dcterms.languageenen_US
dcterms.licenseCC-BY-NC-ND-4.0en_US
dcterms.publisherElsevieren_US
dcterms.subjecthealthen_US
dcterms.subjectlivestocken_US
dcterms.typeJournal Articleen_US

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